National survey Trans&HIV

National survey on the pathways and living conditions of HIV-positive trans people in France

Last updated on 29 October 2024

Why a study of trans people living with HIV?

In France, the health and social situation of trans people remains little discussed and poorly documented. The lack of accurate data contributes to their invisibility and stigmatisation. Trans people living with HIV face multiple forms of discrimination, linked to their gender identity but also to their HIV status, despite advances in HIV prevention and care.

The aim of the Trans&HIV study is to identify the personal and social vulnerabilities of trans people living with HIV, the obstacles to their medical care and their health needs.

Presentation of the Trans&HIV study

This is a national survey, conducted exhaustively among trans people living with HIV and being monitored by HIV services in France.

People eligible for the survey had to :

define themselves in a gender other than that assigned to them at birth
living with HIV
be over 18
be treated in hospitals in mainland France
agree to take part in the survey

This project, which was set up under the Trans&HIV ANRS 95040 initiation contract, is a community-based research project involving people from the communities at all stages. Two strands were envisaged: a quantitative strand to gather socio-behavioural, retrospective biographical and medical data from trans women living with HIV (n=762), and a qualitative strand to gather information from HIV-positive men (n=13).

This survey will enable us to improve our knowledge of trans people living with HIV, particularly in terms of the biographical events that encourage the acquisition of HIV, hepatitis and other STIs. An assessment of the burden of stigma and discrimination, whether in the public arena, in hospitals or in the workplace, will also be carried out. An analysis of the social and psycho-social factors involved in accessing and remaining in care will also be carried out

En bref

Investigator
Bruno SPIRE

Structure/teams:
ACCEPTESS T: RINCON Giovanna
AIDES: MICHELS David
Inserm UMR 1137 : YAZDANPANAH Yazdan
APHP -Ambroise Paré: ROUVEIX Elisabeth
CEPED : PANNETIER Julie

Pathology
HIV

Status
Collecte de données terminées – Analyses en cours

Latest news and scientific publications on the project

Data collection ended in July 2022. Analyses are currently underway.

Here are the scientific publications relating to the research project :

Mora M, Rincon G, Bourrelly M, Maradan G, Freire Maresca A, Michard F, Rouveix E, Pannetier J, Leriche D, Alain T, Yazdanpanah Y, Michels D, Spire B.
Living conditions, HIV and gender affirmation care pathways of transgender people living with HIV in France: a nationwide, comprehensive, cross-sectional, community-based research protocol (ANRS Trans&HIV).
BMJ Open. 2021 Dec 16;11(12):e052691. doi: 10.1136/bmjopen-2021-052691. PMID: 34916316; PMCID: PMC8679115.